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Powering the Personal Health Record: Catalysts and Barriers in India

Harvard FXB's Dr. Satchit Balsari speaks at the workshop.

Harvard FXB’s Dr. Satchit Balsari speaks at the workshop. On April 3rd, the India Digital Health Net (IDHN), a multidisciplinary research and development initiative established to support an Application Programming Interface-enabled (API) federated health data architecture in India, convened a workshop in New Delhi to learn from the several initiatives across the country that are building components of what may ultimately become India’s health tech grid.  The workshop was organized with support…

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International Roma Day: Lifting Neglected Voices

Note: This post has been updated to includes photos from Neglected Voices: The Global Roma Diaspora April 8th marks International Roma Day, a day we celebrate Romani people across the world. Romani people, who have origins in North India, have made distinct and important contributions to Europe and the Americas in many fields, including literature, arts, crafts, music, science, and sports. International Roma Day is also a time to increase awareness…

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New Cross-Sectional Study: Primary Health Care Utilization Among Syrian Refugee and Lebanese Women

Lebanon, the country with the highest per capita ratio of refugees, is heavily burdened by the crisis in Syria. As of December 2018, an estimated 1.5 million Syrian refugees are living in Lebanon, two-thirds of whom are registered with the Lebanese government. Previous studies have found that the crisis has disproportionately affected poor and underserved areas in Lebanon, contributing to social tensions between Lebanese people and Syrian refugees and driving…

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New Harvard FXB Report “Before Not After”: An Evidence-Based Assessment on Preventing Harm to Children

Most interventions designed to protect children from serious harm begin after that harm has occurred. Preventing the harm in the first place would be a far preferable strategy.  The UN Convention on the Rights of the Child – the most widely ratified international human rights treaty in history – recognized this thirty years ago. It requires states to take measures to prevent violence, abuse, injury, neglect, maltreatment or exploitation to children…

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Child Protection: Harvard FXB Online Course through HarvardX

Do you want to learn about child protection through a child-centered systems approach to prevention and response? Then our new online course may be for you. The FXB Center for Health and Human Rights at Harvard University (Harvard FXB) is delighted to announce the launch of a new free online course: “Child Protection: Children’s Rights in Theory and Practice” in cooperation with Harvard’s online initiative, HarvardX. The course is currently open…

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One in One Hundred: Roma Value Education But Face Racism in Access

One in One Hundred: Drivers of Success and Resilience among College-Educated Romani Adolescents in Serbia New report on factors for success among Romani college students challenges the narrative of Roma indifference to education For immediate release: December 20, 2018 One of the major factors in whether Roma adolescents continue on to university is if they have significant support from a non-Roma teacher or peer in combatting everyday racism in school,…

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Changes to Public Charge Regulations: A Threat to Immigrant and Public Health

Panelists: Andrew Cohen, JD; Leah Zallman, MPH, MD; Lara Jirmanus, MPH, MD. On December 5, Harvard FXB sponsored a panel on proposed changes in regulations around public charge and immigration.  Dr. Lara Jirmanus, Andrew Cohen, and Dr. Leah Zallman presented; Professor Nancy Krieger moderated the panel and the lively question and answer session afterwards. Below is a summary of the highlights along with further information about making public comments and…

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Commenting on Regulations, an Example: Proposed Change to Public Charge Ground of Inadmissibility

By Susan Lloyd McGarry Many in the public health community have concerns about the possible effects of proposed changes in regulations related to how US Citizenship and Immigration Services, Department of Homeland Security (US CIS, DHS) determines “public charge” as grounds to deny immigration visas and permanent residence. Harvard FXB sponsored an event in which experts discussed those concerns (read highlights of the event here). December 10 (coincidentally the seventieth…

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Rapid Needs Assessment of the Rohingya in Cox’s Bazar

In March 2018, researchers from Harvard FXB and BRAC (the Bangladeshi-based international nongovernmental organization) conducted a rapid assessment household survey among 800 Rohingya and host families in Ukhia and Teknaf in the District of Cox’s Bazar in southern Bangladesh, on the border of Myanmar. Preliminary results are available here. The study underscored the alarmingly low levels of vaccination among the Rohingya in Myanmar, the high mortality rate among young men…

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Leading with Science: One Year After Hurricane Maria

On the first year anniversary of the landfall of Hurricane Maria in Puerto Rico, several of the senior authors of the May 2018 New England Journal of Medicine paper “Mortality in Puerto Rico after Hurricane Maria”  discussed the motivation and rationale for the study, the significance of their findings, the impact of their research, and their decision to release all their data and code online. The September 21 panel,  Beyond…

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Beyond Maria: Leading With Science

In late May this year, a collaborative team from Harvard FXB Center for Health and Human Rights, Harvard T.H. Chan School of Public Health, the University of Colorado School of Medicine, and Carlos Albizu University in Puerto Rico published “Mortality in Puerto Rico after Hurricane Maria” in the New England Journal of Medicine, their study which suggested that the then official Puerto Rican death registry numbers of 64 excess deaths…

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Fall 2018 Work-in-Progress Seminar Schedule

Harvard FXB’s Work-in-Progress (WIP) Series will start the semester with a presentation from Dr. Satchit Balsari on recent Harvard FXB research with the Rohingya in Cox’s Bazaar, Bangladesh. WIPs are an opportunity for researchers to share their work while it is still in formulation. A WIP generally starts with a formal presentation, followed by a lively question-and-answer period. This fall they generally take place on Wednesdays, from 1-2PM, with Dr.…

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Dean Williams names Mary Bassett incoming director of the François-Xavier Bagnoud (FXB) Center for Health and Human Rights

Today Michelle Williams, Dean of the Harvard T.H. Chan School of Public Health announced that Dr. Mary Bassett would succeed Dr. Jennifer Leaning as director of Harvard FXB, with the transition in leadership beginning in September. As Dr. Leaning wrote about her decision to step down last November, “My reasons for stepping down next fall are ones tied to the writing that I hope to do, and the time it…

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Roma Resistance: Reclaiming Our Story

Berlin Memorial to the Roma and Sinti Murdered by Nazism /Photo by Dietmar Rabich, CC BY-SA 4.0 By Marian Mandache August 2 marks the Day of Remembrance for Victims of the Roma Holocaust. Between 500,000 and 1.5 million Roma were exterminated during the Holocaust  by the Nazi regimes and their allies. The memory of the Romani victims and survivors is yet to be fully recognize and preserved in history books,…

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Harvard FXB Child Protection Curricula: Harvard Credentials with Heart

By Rebecca Shin This past year the François-Xavier Bagnoud Center for Health and Human Rights at Harvard University (Harvard FXB) has broadened its child protection pedagogy through three focused initiatives.  At the end of June, we completed our first week-long Child Protection Executive Education Course, with leaders from UNICEF and their national partners.  Participants from 13 countries across Africa, South America, South and East Asia, Central Europe and the Middle…

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Reimagining Health Data Exchange: An API-Enabled Roadmap for India

In July 2018, the Government of India’s policy think tank National Institution for Transforming India (NITI Aayog) invited feedback on their blueprint for a “National Health Stack.”  The National Health Stack would provide the digital infrastructure or technical spine to support India’s recently announced National Health Protection Scheme extending coverage to 500 million people. In response, an interdisciplinary team of researchers and practitioners from across Harvard and India have published…

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Harvard FXB to Explore Romani Realities in the US

Thanks to a grant from the Cummings Foundation, the François-Xavier Bagnoud Center for Health and Human Rights at Harvard University (Harvard FXB) is launching a new research project focused on the situation of Roma in the United States. Since 2012, Harvard FXB has implemented an innovative research and capacity-strengthening program related to the Roma, who have long been an ill-treated minority, facing persecution and, in the past, even slavery. Up…

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Professor Jacqueline Bhabha on Family Separation and Migration

Separation at the border On June 27, our colleague Chris Sweeney in the Harvard Chan Office of Communications interviewed Harvard FXB’s director of research, Professor Jacqueline Bhabha, on family separation for their feature Three Questions.  Below is an excerpt from the piece, with one question and answer: In all of your years working on migrant issues around the world, have you ever seen a similar policy enacted? I can’t think…

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June 22, 2018 Harvard FXB Statement on US Zero Tolerance Policy

Statement Banner

President Trump introduced a “zero tolerance” immigration policy on April 6, 2018, as a seemingly fail-safe measure to prevent what he calls undesirables from seeking to enter the US across the border with Mexico. He launched the policy to elevate his stature as the defender of an American populace under threat. His account is eerily reminiscent of pronouncements by genocidal regimes dehumanizing targeted groups. Rwandan Hutus described their Tutsi targets…

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Letter from the Director, Dr. Jennifer Leaning

Dear colleagues, In the two years since our last report, the major issues that drive our work have become more prominent and more exiguous. As of 2018, one of every 110 people on earth is either an asylum seeker, refugee, or internally displaced. The calamitous wars in Syria and Yemen, the ferocity of the Myanmar regime against its Rohingya citizens, extreme environmental volatility brought about by climate change, increasing political…

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Study Estimates Prolonged Increase in Puerto Rican Death Rate After Hurricane Maria

worker with car embedded in dirt

Times Higher Education named this paper as the most discussed academic paper in 2018 through its Altmetric 100 (and the most discussed ever in the Altmetric 100’s six-year history).   According to an interdisciplinary study released today online at the New England Journal of Medicine, the mortality rate in Puerto Rico may have risen by 62% [95 % Confidence Interval (CI), 11% to 114%] in 2017, after Hurricane Maria. The…

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Roma Rights and the Next Generation: Alone and Together

By Susan Lloyd McGarry This spring semester Harvard FXB has sponsored or convened three events that brought students and Roma scholars together and suggested some possible future directions in the struggle for Roma rights and in Harvard FXB’s Roma research.. Alone Together: Strength and Solidarity Between the Roma and African American Communities—Harvard FXB’s Sixth Annual International Roma Day Event On April 4, a few days before International Roma Day on…

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Do You Know Where You Are Going? (the 2016 eviction from the Calais Jungle)

a reprise from the migrant diaries: Calais, France—Friday October 21, 2016 The eviction is definitely happening Monday. Refugees and volunteers have a meeting this afternoon at the Khyber Restaurant and Annie, one of the long-term volunteers, goes through the facts: The eviction will start on Monday at 8 am. People will be asked to go to a warehouse and queue in one of four lines: vulnerables, unaccompanied children, families, or…

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International Moves Can Provide Pathway to Rational, Just and Inclusive Migration Policy, Says Bhabha

picture of Jackie Bhabha talking

Harvard FXB research director Jacqueline Bhabha recently gave the Rethinking Open Society lecture at the Central European University in Budapest earlier this spring. Below is the first paragraph from CEU’s coverage of her talk: “It is hard to think of a time when public engagement with migration policy globally has been as evident or as polarized as it is now,” said Harvard Professor Jaqueline Bhabha, as she opened her Rethinking…

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The Question is the Answer: Who Created Flamenco?

Family gathered around guitarist

A personal and political story by Victoria Eugenia Ríos-Terheun My mother, originally from the Bay Area and an American, and my father, a Flamenco guitarist and Gitano (Spanish Romani), moved to the San Francisco Bay Area from Morón de la Frontera, Spain to the San Francisco Bay Area shortly before I was born in 1979. They came with my older brother and sister in pursuit of opportunities for my dad’s…

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March 20th marks the second anniversary of the first bilateral “migration management” agreement of the European migration crisis. The agreement was forged between the European Union (EU) and Turkey to stem the flow of refugee and migrant arrivals in Europe. Turkey promised to halt the daily departures of thousands fleeing their homes and heading to the EU; in exchange the Union agreed to increase the resettlement of Syrian refugees stranded…

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There is No Ceasefire and People Continue to be Killed in East Ghouta

By Jennifer Leaning Following the meeting of the UN Security Council and the unanimous passage of a ceasefire resolution on February 24, in East Ghouta, at least 344 people have been wounded and 71 have been killed every day – totaling 4,829 wounded and 1,005 dead*. Still trapped in E. Ghouta are an estimated 400,000 people. Under pressure from the Russian and Syrian governments, the language of the ceasefire resolution…

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Stop the Killing of Civilians in Syria

Attacks on Medical Facilities Are One Aspect of the Crisis for Civilians, FXB Graphic, based on data from Physicians for Human Rights report and webpage, “Anatomy of a Crisis, A Map of Attacks on Health Care in Syria” By Jennifer Leaning On February 24, 2018, the UN Security Council unanimously approved SCR 2401, calling for an immediate stop to the attacks on civilian populations in Syria and a 30-day ceasefire…

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A call for action to protect civilians and health care in East Ghouta

Eastern Ghouta Under Siege Since 2013 © UNHCR/Assadullah Amin 2017 photo Death and suffering in Eastern Ghouta, Syria: a call for action to protect civilians and health care from FXB Director Jennifer Leaning, members of the Lancet Commission on Syria, and others engaged in this issue. Since Feb 4, 2018, Syrian forces with Russian support have bombarded Eastern Ghouta, an enclave out of government control near Damascus. This military action…

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Roma Slavery is Historical Trauma

The twentieth of February marks the commemoration of five centuries of Roma slavery in Romania, a period which has reverberating impacts even today. Abolished in 1855/6, this episode of massive group trauma is virtually absent from public memory. For whom, then, should this commemoration hold significance? Nationally we continue to experience the fracturing social fault lines of trauma as historically marginalized groups fight for liberation. Globally, the acknowledgment of Roma…

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Harvard FXB Responds to White Paper on Data Protection Framework for India

In 2017, the Government of India constituted a special committee of experts chaired by Retired Supreme Court Justice Shri B. N. Srikrishna to study “various issues relating to data protection in India and make specific suggestions on principles to be considered for data protection in India and suggest a draft Data Protection Bill. The objective is to ‘ensure growth of the digital economy while keeping personal data of citizens secure…

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An Icy Wind Blows

from the migrant diaries: Calais, France—Autumn 2017 Sunday November 12, 2017* The light is going and there is an icy wind blowing as we walk up the canal to the bleak grassy corner. Brother Johannes told us yesterday this is where the young Oromo hang out and they are here now. [Ed.–The Oromo are the largest ethnic group in Ethiopia and the Horn of Africa.] Some 20 to 30 young…

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The Heart of The Matter: Banning Corporal Punishment of Children at Home

‘How can it be that hard to make a law that parents cannot hit their kids? By Johanna von Bahr This question comes from Julia, 13 years, whom I met during a workshop on children’s rights in Stockholm, Sweden. She lives in the country that was the first in the world to prohibit all corporal punishment of children, in the year 1979. Julia’s question is very interesting as it seeks…

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A Return to the Beginning: Latest HHR Journal Issue

UNAIDS: #Noexcuse march against gender-based violence. The march coincides with International Men’s Day on November 19. Cape Town City centre, South Africa. Photo: UNAIDS/Dwayne Senior The December 2017 issue of the Health and Human Rights Journal has two special sections: Romani People and the Right to Health, and HIV and Human Rights. Speaking at the launch of the issue at the FXB Center on December 13, executive editor Carmel Williams…

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Chilling New Report by FXB’s Sergio Aguayo Cites Greater Death Toll in Allende Massacre

Ginger Thompson, ProPublica A disturbing report released today by researchers at the prestigious Colegio de Mexico provides new details about a 2011 massacre in Allende, a quiet Mexican ranching town less than an hour’s drive from the United States, and suggests that many more people were killed in the incident than estimated by Mexican authorities. The report’s authors also repeatedly cite an investigation of the incident by ProPublica and National…

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Psychology holds key to getting people out before disaster strikes

Mass evacuations in response to natural disasters like Hurricane Maria are a logistical challenge, but also face psychological barriers to residents being willing and able to leave. EPA Elizabeth Newnham, Curtin University; Rex Pui-kin Lam, University of Hong Kong, and Satchit Balsari, Harvard University Natural disasters are becoming more frequent and intense. Recent hurricanes, floods, bushfires and earthquakes have highlighted the significant potential for mass trauma. Yet we know relatively…

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the migrant diaries: Mexico 2017-3

It Looks Just Like Haiti by Lynne Jones Tijuana, Mexico* Monday May 1, 2017 Toy making this morning. This is my favourite parent-and-baby group session because everyone always gets completely engaged. And today we have four fathers! At the beginning the infants are rioting around as usual and I am trying to sort out the box of rubbish I bring to demonstrate that your kitchen is full of toys: old…

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Humanitarian Response to Conflict and Disaster Class With HarvardX

FXB Director Dr. Jennifer Leaning will be leading a class on Humanitarian response to conflict and disaster. The class will be offered by edX in conjunction with HarvardX and co-taught by the Harvard Humanitarian Initiative’s Michael VanRooyen. This course from the Harvard Humanitarian Initiative and HarvardX seeks to prepare learners to recognize and analyze emerging challenges in the humanitarian field. The course explores the ethical and professional principles that guide humanitarian response…

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Protecting Health Care in Armed Conflict: Harvard FXB at UNGA 72

On Friday, September 22, 2017, members of Harvard FXB’s Burden of War Project team, including FXB director and co-chair of the Lancet-American University of Beirut Commission on Syria, Dr. Jennifer Leaning, participated in the high-level side event, Protecting Health Care in Armed Conflict at the 72nd United Nations General Assembly. The Permanent Missions of Canada, the Netherlands, Spain, and the United Kingdom, in collaboration with the Lancet-AUB Commission on Syria…

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Jennifer Leaning on Climate Change and Migration

FXB director Dr. Jennifer Leaning has long been concerned about climate change from a humanitarian and human rights perspective, particularly as it affects forced migration.  She will deliver the keynote for an upcoming symposium on Climate Change, Migration, and Health on Thursday, September 28 (free, but registration necessary). Sponsored by the Harvard Global Health Institute,  the symposium explores the grave consequences for global health that climate-induced migration poses in the…

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Spotlight on the Harvard FXB Field Education Internship Program

The Harvard FXB Field Education Internship Program is a university-wide program established in 2014 at the Harvard T.H. Chan School of Public Health and the Harvard FXB Center for Health and Human Rights. The FXB Field Education Internship Program engages Harvard students in global community service and bridges connections between academia and practice in a university-wide effort. The program provides an opportunity for Harvard students to expand their knowledge of and…

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Remembering Heather Adams

Heather and her son, Rory. Harvard FXB acknowledges today as the one year anniversary of the passing of Heather Adams. We continue to think of her as a guide in all aspects of our development of a research and policy program on disability with dedicated faculty and staff. Her vision continues to inspire our work. Below is a post written by Jennifer Leaning and Jacqueline Bhabha last year upon Heather’s passing:…

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Jennifer Leaning Interviewed by Weatherhead Center on the “Burden of War” in Syria

Our colleague Michelle Nicholasen at Weatherhead Center for International Affairs, interviewed Harvard FXB Director Jennifer Leaning about her experience as co-chair of The Lancet-AUB Commission on Syria and  the “Burden of War” on the Syrian people: Q: At the highest level, what is the nature of the Lancet team’s work? A: We are looking at what I have coined the “burden of war” on civilian populations. We are unpacking the notion of “burden” to…

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the migrant diaries: Mexico 2017-2

‘I Did Not Choose to Be Here’ by Lynne Jones Tijuana, Mexico* Thursday May 5, 2017 The problem with making any plans to work with migrant children is that they migrate. Amparo, one of my hosts, had also asked me to do a camera/storytelling workshop with a group of Haitian children living in a shelter here in Tijuana. But four days ago she discovered they that they have all gone…

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Sheri Fink on Torture and the CIA for the New York Times

Sheri Fink, Harvard FXB Fellow and Pulitzer Prize winning correspondent for the New York Times, has a new piece out on the brutality of some C.I.A. interrogation tactics from the testimony of the men who designed and implemented them. Read her story, co-written with James Risen, here now: http://nyti.ms/2sonIeH   You can find a reflection and follow-up by Sheri on this story here. And for more from Sheri, go here.

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Video: The Weaponization of Health Care in Syria

The Lancet-American University of Beirut (AUB) Commission on Syria, which FXB director Dr. Jennifer Leaning co-chairs, published its first health policy paper, “Health workers and the weaponisation of health care in Syria: a preliminary inquiry” by Fouad M. Fouad, Annie Sparrow, Ahmad Tarakji, Mohamad Alameddine, Fadi El-Jardali, Adam P. Coutts, Nour El Arnaout, Lama Bou Karroum, Mohammed Jawad, Sophie Roborgh, Aula Abbara, Fadi Alhalabi, Ibrahim AlMasri, and Samer Jabbour. This video…

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Reclaiming Roma Adolescence in Harvard Educational Review

The Summer 2017 issue of the Harvard Educational Review (HER) includes “Reclaiming Adolescence: A Roma Youth Perspective,”  a paper about the FXB Roma Program research in Serbia in partnership with the Center for Interactive Pedagogy. Jacqueline Bhabha, Arlan Fuller, Margarete Matache, Jelena Vranjesevic, Miriam Chernoff, Boris Spasic, and Jelena Ivanis coauthored it.  Most of the abstract and a few sentences from the opening paragraph appear below:  In this article, the…

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Dear Gadjo (non-Romani) Scholars…

“Me sem rom, me sem romni” March, 2011 | Photo courtesy of Romani CRISS By Margareta Matache [This is the third of a three-part blog series, “The White Norm in Gypsy and Romani Studies,” about the racialization and othering of Romani people against a white norm in standard Gypsy and Romani studies. The first segment explored the contribution of Gypsy studies to the perception of the Roma as inferior to…

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the migrant diaries: Mexico 2017-1

Refugees at the beginning of the Via Crucis

‘Don’t Hate Migrants’ by Lynne Jones Chiapas, Mexico: Ciudad Hidalgo on the border of Guatemala and Mexico* Sunday April 9, 2017 When I asked the tall woman with the tiny baby why she left El Salvador, she answered in five words: Because they killed my husband. The tiny baby is 27 days old. She holds him close against her chest with a cloth pulled over to protect him from the…

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